{"id":170,"date":"2022-08-30T07:35:24","date_gmt":"2022-08-30T05:35:24","guid":{"rendered":"https:\/\/isca2022.albinismalliance.org\/?page_id=170"},"modified":"2022-08-30T07:42:17","modified_gmt":"2022-08-30T05:42:17","slug":"history-of-isca","status":"publish","type":"page","link":"https:\/\/isca2022.albinismalliance.org\/history-of-isca\/","title":{"rendered":"History of ISCA"},"content":{"rendered":"\n

The International Scientific Conference on Albinism – ISCA – was created by the Global Albinism Alliance (GAA) in 2022. It is the first component of a future GAA program dedicated to improving the health of persons with albinism around the world.<\/h3>\n\n\n\n

ISCA 2022 builds on the momentum created by the EDA (European Days of Albinism) conference series, which was held every two years from 2012-2020.The EDA conferences were traditionally co-organized by Albinism Europe<\/a> (the network of European associations of persons with albinism) and one of the national albinism associations from Europe.<\/p>\n\n\n\n

At the 5EDA<\/a> in 2020, there was a significant increase in the number of participants, an increased number of non-European countries represented and an overall consensus that research on a rare health condition such as albinism is best addressed at the global level. It became clear at that point that the EDA conference series should no longer be just a European event. The decision was then made to move to an international conference and to have this new event be organized by the Global Albinism Alliance.<\/p>\n\n\n\n

The EDA conference series was created in 2012 by Genespoir<\/a>, the French association for persons with albinism, with the support of the following scientists:<\/p>\n\n\n\n